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Artificial Intelligence Systems for Supporting Informal Caregivers of People Living with Alzheimer's Disease or Related Dementias: A Systematic Review

Published: 11 May 2024 Publication History

Abstract

Informal caregivers of people living with Alzheimer’s disease or related dementias (PLWD) face challenges like obtaining personalized information and monitoring PLWD’s health. Rapid advancements in technology, especially in sophisticated and controversial areas like artificial intelligence (AI), prompted our study to assess AI’s potential and challenges in supporting the needs of informal caregivers of PLWD. Caregiving activities require dynamic, often unpredictable, and sometimes emotionally draining tasks that deal with a large amount of information. We conducted a systematic review to understand what AI technology has been developed to support informal caregivers of PLWD. We collected 920 papers from ACM Digital Library, IEEE Xplore, and PubMed. Screening and eligibility evaluation resulted in 16 papers for full-text review. We present which documented needs of informal caregivers have been explored by the existing research, and the contexts of the AI solutions including interfaces, data, and algorithms, as well as their effectiveness, challenges, and limitations.

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      cover image ACM Conferences
      CHI EA '24: Extended Abstracts of the CHI Conference on Human Factors in Computing Systems
      May 2024
      4761 pages
      ISBN:9798400703317
      DOI:10.1145/3613905
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      Published: 11 May 2024

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      Author Tags

      1. Alzheimer’s disease
      2. Artificial Intelligence
      3. Dementia
      4. Human-centered design
      5. Informal caregivers

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      • (2025)Exploring Knowledge Sharing and Community of Practice Development: A Stakeholders Analysis of Social Service Organizations in a Midwestern Underserved CommunityCompanion Proceedings of the 2025 ACM International Conference on Supporting Group Work10.1145/3688828.3699645(83-89)Online publication date: 12-Jan-2025
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