ERKNet

📢 Reminder: Call for Abstracts - ERKNet Annual Meeting 2025 🔔 Exclusively for ERKNet members! Don’t miss your chance to contribute.

🩺 𝐊𝐢𝐝𝐧𝐞𝐲 𝐑𝐞𝐩𝐥𝐚𝐜𝐞𝐦𝐞𝐧𝐭 𝐓𝐡𝐞𝐫𝐚𝐩𝐲 - 𝐎𝐯𝐞𝐫𝐯𝐢𝐞𝐰 🌟 Living with kidney failure? Here’s how modern treatments can help: 1️⃣ 𝐃𝐢𝐚𝐥𝐲𝐬𝐢𝐬: 𝐇𝐞𝐦𝐨𝐝𝐢𝐚𝐥𝐲𝐬𝐢𝐬: Blood filtered by machine, 3x/week at a center. 𝐏𝐞𝐫𝐢𝐭𝐨𝐧𝐞𝐚𝐥: Home-based, using your abdominal lining as a filter. 2️⃣ 𝐓𝐫𝐚𝐧𝐬𝐩𝐥𝐚𝐧𝐭: Restores kidney function, with dialysis bridging the wait for a donor. ✨ Fun Fact: A dialysis machine is human-sized, but your kidneys are only fist-sized! 💡 Talk to your doctor to find the best option for you. #KidneyHealth #Dialysis #Transplant #ERKNet #RenalCare

🌟Meet Giulia Bassanese, our Pediatrician & ERKReg Registry Expert 🌟 Since joining us, Giulia has been an invaluable asset to the ERKNet Team. Read more here to discover her incredible work. 🌐 #MeetTheTeam #Pediatrician #ERKNet #RareKidneyDiseases

📢 𝐂𝐚𝐥𝐥 𝐟𝐨𝐫 𝐀𝐛𝐬𝐭𝐫𝐚𝐜𝐭𝐬: ERKNet Annual Meeting 2025 ERKNet members only! We’re excited to announce the call for abstracts for our upcoming annual meeting, for 𝐫𝐚𝐫𝐞 𝐤𝐢𝐝𝐧𝐞𝐲 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 and 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞𝐬. This is your chance to showcase your work! Key Details:  🔹 Submission 𝐃𝐞𝐚𝐝𝐥𝐢𝐧𝐞: 3 February 2025  🔹 Opportunities for Top Abstracts: - Present in a plenary session on 20 May 2025  - Display your work as a poster throughout the event  - Engage with attendees during the welcome reception and breaks Travel Fellowship: All oral presenters will receive a travel fellowship for the conference. 📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: Visit our website for full details, including word limits, poster formats, and how to submit your abstract. 🔗 https://lnkd.in/ebgU6xYx #CallForAbstracts #ERKNet2025 #RareDiseases #KidneyResearch #ClinicalCases #Nephrology #RareKidneyDisease #KidneyDisease #ERKNet

📢 𝐎𝐮𝐭 𝐨𝐟 𝐎𝐟𝐟𝐢𝐜𝐞: 𝐃𝐞𝐜𝐞𝐦𝐛𝐞𝐫 23𝐫𝐝 – 𝐉𝐚𝐧𝐮𝐚𝐫𝐲 7𝐭𝐡 📢 As the year comes to a close, the ERKNet team will be out of office from December 23rd to January 7th, taking time to rest and recharge after a busy and productive year. We want to thank all our experts, members, ePAGs, and collaborators for their incredible work, dedication, and energy. 💙 We wish you all relaxing holidays and a happy new year. Mails and messages will be answered as quickly as possible upon our return. We're excited to see what the new year holds in store for us! 🌟 #OutOfOffice #ThankYou #HappyHolidays #ERKNet #NewYear #EuropeanReferenceNetwork #Nephrology #RareKidneyDisease #RareDiseaseAwareness #KidneyDisease

🎄✨𝐇𝐚𝐩𝐩𝐲 𝐇𝐨𝐥𝐢𝐝𝐚𝐲𝐬 𝐟𝐫𝐨𝐦 𝐄𝐑𝐊𝐍𝐞𝐭!🎉 Whether you say Happy holidays, Fijne feestdagen, Wesołych świąt, Šťastné svátky or God ferie, we’re wishing you all the best this holiday season! We’re so grateful to be part of such an inspiring network and can’t wait to see what we’ll achieve together in the new year. 🥂💙 #HappyHolidays #ERKNet #Grateful #RareDiseases #EuropeanNetwork #rarekidneydisease #kidneydisease #kidneyhealth #kidneydiseaseawareness #nephrology #ern #patientcare #kidneyresearch 

Kidney disease can also impact other organs systems. By prioritizing early detection and timely management, we can prevent complications and improve the quality of life for the 10% of the European population which is estimated to live with a kidney disease. Please join us at the EKHA Kidney Forum on 28 January in the European Parliament to discuss how we can improve kidney care all over Europe.   🙏 Marianne Silkjær Nielsen, caregiver and founder of CompCure European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet

𝐍𝐞𝐭𝐰𝐨𝐫𝐤 𝐀𝐁𝐂'𝐬: 𝐈 𝐢𝐬 𝐟𝐨𝐫… 𝐈𝐧𝐯𝐨𝐥𝐯𝐢𝐧𝐠 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬 𝐚𝐧𝐝 𝐅𝐚𝐦𝐢𝐥𝐢𝐞𝐬 At ERKNet, patients and families, represented by ePAGs (European Patient Advocacy Groups), are at the core of our work, shaping care for rare kidney diseases across Europe. 🌍 📋 Highlights: 🎤 Co-developing clinical guidelines and patient brochures 📚 Sharing perspectives in webinars as the patient voice 🛤️ Creating 12 patient journeys with ePAG 📊 Leading surveys and patient-driven research initiatives 🤝 This collaboration connects healthcare professionals with the patient community, fostering innovative, high-quality care for the future. ✨ Together, we ensure patient voices are heard and valued at every step. Interested in contributing? Let’s work together! #PatientVoices #RareDisease #KidneyCare #ERKNet #Collaboration #HealthcareInnovation #Nephrology

Kidney diseases tend to appear and progress in silence. Often no one will notice them in the early stages, not even yourself. This is why screening is essential to secure early diagnoses, optimal care, and prevention of end-stage-renal disease. Please join the EKHA Kidney Forum on 28 January in the European Parliament. Together we can support better kidney health in Europe. 🙏 Ida Maria Schmidt, Paediatric Nephrologist, Rigshospitalet, Chair of the Danish Society of Paediatric Nephrology (DaBNeS). Tomislav Sokol European Renal Association (ERA) EDTNA/ERCA - European Dialysis and Transplant Nurses Association/European Renal Care Association EKPF - European Kidney Patients' Federation Nierstichting International Society of Nephrology ESOT - European Society for Organ Transplantation ERKNet CompCure

📍 ERICA General Assembly – Reflecting and Shaping the Future Over the last three days the final ERICA General Assembly was underway in Udine, bringing together researchers, patient advocates, regulators, and industry to reflect on four years of progress and plan the future of ERNs. 💡 Jose presented key achievements of WP2 (co-led by Franz and Eduardo López-Granados) and an update on ERN registries. 💡 Franz discussed using primary healthcare data for research and will co-chairs todays session with ERICA Coordinator Alberto Pereira on aligning ERN priorities. #ERICA2024 #ERNResearch #ClinicalResearch #ERKNet #Kidneydisease #nephrology