ERKNet

🌟 J is for JARDIN 🌍 What is JARDIN? A Joint Action uniting 58 partners across 29 countries to integrate European Reference Networks (ERNs) into national healthcare systems, improving rare disease care. 💙 ✨ Why JARDIN Matters: JARDIN bridges gaps in healthcare systems to enhance diagnosis, treatment, and patient care. 📌 What We Do: • Build frameworks & optimize care pathways • Improve health data sharing & coordination • Support Expert Centres with training & resources 💡 How You Can Help: Your feedback drives change! Participate in surveys and shape the future of rare disease care. 🌟 👉 Learn more: jardin-ern.eu JARDIN Joint Action #JARDINProject #RareDiseases #HealthcareInnovation #TogetherForRare

🌐 Upcoming ERKNet Webinar 🌐 We’re excited to invite you to our next webinar: Topic: Streptococcus pneumoniae-HUS Date: January 28, 2025 Time: 4:00–5:00 PM CET Speaker: Nicole van de Kar This session will provide valuable insights into the diagnosis and management of this rare condition. Don't miss this opportunity to learn from an expert in the field! 👉 Register now and secure your spot: https://lnkd.in/d6W52eJ6

📢 Reminder: Call for Abstracts - ERKNet Annual Meeting 2025 🔔 Exclusively for ERKNet members! Don’t miss your chance to contribute.

📢 𝐁𝐢𝐠 𝐧𝐞𝐰𝐬: 𝐓𝐡𝐞 𝐄𝐑𝐊𝐍𝐞𝐭/𝐋𝐄𝐈𝐋𝐀 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞 𝐀𝐩𝐩 𝐡𝐚𝐬 𝐥𝐚𝐮𝐧𝐜𝐡𝐞𝐝! 📢 After months of development and feedback from our experts, we’re proud to introduce the 𝐄𝐑𝐊𝐍𝐞𝐭/𝐋𝐄𝐈𝐋𝐀 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞 𝐀𝐩𝐩 - a tool designed to make managing rare kidney diseases easier and more efficient for medical professionals. The app provides: 📚 Clinical guidelines for quick and easy reference 🧭 Decision pathways to navigate complex clinical scenarios 🧮 Integrated calculators tailored for nephrology Reviewed by ERKNet experts and beta-tested by 20 users, the app combines accuracy, reliability, and ease of use—all at your fingertips. 𝐋𝐞𝐚𝐫𝐧 𝐦𝐨𝐫𝐞 about the app right here: 🔗 https://lnkd.in/evEeKJgQ Or dive right into it today: 𝐀𝐩𝐩𝐥𝐞: https://lnkd.in/eAcPVgj9 𝐀𝐧𝐝𝐫𝐨𝐢𝐝: https://lnkd.in/e7Ci24G3 Thank you to all our testers and everyone involved in creating this app! 💙 Mónica Furlano Savino Sciascia Enrico Vidal Tanja Wlodkowski Ana Teixeira Evelien Snauwaert Valentine Gillion Johannes Trapp Steven Van Laecke Tom Nijenhuis Marie Stephanie Schäfer

📢 Reminder: Call for Abstracts - ERKNet Annual Meeting 2025 🔔 Exclusively for ERKNet members! Don’t miss your chance to contribute.

🩺 𝐊𝐢𝐝𝐧𝐞𝐲 𝐑𝐞𝐩𝐥𝐚𝐜𝐞𝐦𝐞𝐧𝐭 𝐓𝐡𝐞𝐫𝐚𝐩𝐲 - 𝐎𝐯𝐞𝐫𝐯𝐢𝐞𝐰 🌟 Living with kidney failure? Here’s how modern treatments can help: 1️⃣ 𝐃𝐢𝐚𝐥𝐲𝐬𝐢𝐬: 𝐇𝐞𝐦𝐨𝐝𝐢𝐚𝐥𝐲𝐬𝐢𝐬: Blood filtered by machine, 3x/week at a center. 𝐏𝐞𝐫𝐢𝐭𝐨𝐧𝐞𝐚𝐥: Home-based, using your abdominal lining as a filter. 2️⃣ 𝐓𝐫𝐚𝐧𝐬𝐩𝐥𝐚𝐧𝐭: Restores kidney function, with dialysis bridging the wait for a donor. ✨ Fun Fact: A dialysis machine is human-sized, but your kidneys are only fist-sized! 💡 Talk to your doctor to find the best option for you. #KidneyHealth #Dialysis #Transplant #ERKNet #RenalCare

🌟Meet Giulia Bassanese, our Pediatrician & ERKReg Registry Expert 🌟 Since joining us, Giulia has been an invaluable asset to the ERKNet Team. Read more here to discover her incredible work. 🌐 #MeetTheTeam #Pediatrician #ERKNet #RareKidneyDiseases

📢 𝐂𝐚𝐥𝐥 𝐟𝐨𝐫 𝐀𝐛𝐬𝐭𝐫𝐚𝐜𝐭𝐬: ERKNet Annual Meeting 2025 ERKNet members only! We’re excited to announce the call for abstracts for our upcoming annual meeting, for 𝐫𝐚𝐫𝐞 𝐤𝐢𝐝𝐧𝐞𝐲 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡 and 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐢𝐧𝐠 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐜𝐚𝐬𝐞𝐬. This is your chance to showcase your work! Key Details:  🔹 Submission 𝐃𝐞𝐚𝐝𝐥𝐢𝐧𝐞: 3 February 2025  🔹 Opportunities for Top Abstracts: - Present in a plenary session on 20 May 2025  - Display your work as a poster throughout the event  - Engage with attendees during the welcome reception and breaks Travel Fellowship: All oral presenters will receive a travel fellowship for the conference. 📝 𝐒𝐮𝐛𝐦𝐢𝐬𝐬𝐢𝐨𝐧 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞𝐬 & 𝐌𝐨𝐫𝐞 𝐈𝐧𝐟𝐨: Visit our website for full details, including word limits, poster formats, and how to submit your abstract. 🔗 https://lnkd.in/ebgU6xYx #CallForAbstracts #ERKNet2025 #RareDiseases #KidneyResearch #ClinicalCases #Nephrology #RareKidneyDisease #KidneyDisease #ERKNet

📢 𝐎𝐮𝐭 𝐨𝐟 𝐎𝐟𝐟𝐢𝐜𝐞: 𝐃𝐞𝐜𝐞𝐦𝐛𝐞𝐫 23𝐫𝐝 – 𝐉𝐚𝐧𝐮𝐚𝐫𝐲 7𝐭𝐡 📢 As the year comes to a close, the ERKNet team will be out of office from December 23rd to January 7th, taking time to rest and recharge after a busy and productive year. We want to thank all our experts, members, ePAGs, and collaborators for their incredible work, dedication, and energy. 💙 We wish you all relaxing holidays and a happy new year. Mails and messages will be answered as quickly as possible upon our return. We're excited to see what the new year holds in store for us! 🌟 #OutOfOffice #ThankYou #HappyHolidays #ERKNet #NewYear #EuropeanReferenceNetwork #Nephrology #RareKidneyDisease #RareDiseaseAwareness #KidneyDisease

🎄✨𝐇𝐚𝐩𝐩𝐲 𝐇𝐨𝐥𝐢𝐝𝐚𝐲𝐬 𝐟𝐫𝐨𝐦 𝐄𝐑𝐊𝐍𝐞𝐭!🎉 Whether you say Happy holidays, Fijne feestdagen, Wesołych świąt, Šťastné svátky or God ferie, we’re wishing you all the best this holiday season! We’re so grateful to be part of such an inspiring network and can’t wait to see what we’ll achieve together in the new year. 🥂💙 #HappyHolidays #ERKNet #Grateful #RareDiseases #EuropeanNetwork #rarekidneydisease #kidneydisease #kidneyhealth #kidneydiseaseawareness #nephrology #ern #patientcare #kidneyresearch