Neuromuscular Disease Network for Canada (NMD4C)

Registration is now open for our next CPD-accredited neuromuscular webinar! Join us and Muscular Dystrophy Canada for an Update on treatment in Pompe disease. #LetsTalkNMD 📅 Tuesday Oct 22, 2024 🕝 5:00pm ET Register at: https://lnkd.in/exiJ-Hfj Chair: Dr. Kerri Schellenberg | Neuromuscular Neurologist & Associate Professor at University of Saskatchewan | Medical Director of the ALS/MND clinic and the Royal University Hospital EMG lab Speaker: Professor Dr. med. Benedikt Schoser, FEAN | Professor of Neurology, Senior consultant neurologist of the Friedrich-Baur-Institute, Dep. of Neurology, Ludwig-Maximilians-University Learning objectives: 1) Understand the multisystemic facets of Pompe disease 2) Explore the differential therapy for Pompe disease and their caveats. This webinar is primarily targeted at Canadian clinicians, academics, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar. The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada. #webinar #education #Pompe #neuromuscular Institute of Musculoskeletal Health and Arthritis (IMHA)

Today is the 4th International #MyotonicDystrophyAwareness Day! Myotonic dystrophy is a rare, multi-systemic, inherited disease that affects thousands of individuals and families worldwide. This awareness day aims to turn a spotlight on #MyotonicDystrophy to help improve service provision, basic research, drug development, and policymaking related to the disease. Today we encourage members of the global NMD community to help change the future of DM1 by spreading awareness!💚🌎 Learn more at: https://lnkd.in/gS2iCTB | Myotonic Dystrophy Foundation

Des milliers d’aînés québécois composent au quotidien avec une maladie génétique peu connue, qui entraîne des symptômes handicapants, dont une perte musculaire, des problèmes de déglutition et un abaissement des paupières. C’est même ici, au Québec, qu’il y a le plus de cas au monde. « C’est un problème important en termes de santé publique et de neurologie », dit le neurologue et chercheur Bernard Brais, du Neuro. Le spécialiste suit des patients atteints de cette maladie depuis le début des années 1990. C’est d’ailleurs lui qui a identifié le gène responsable de la maladie au début de sa carrière. En savoir plus : https://tr.ee/tcEV_2GqFU   #genetiques #neurologie #maladiesrares Centre universitaire de santé McGill | McGill University Health Centre Fonds de recherche du Québec

The Department of Medicine and the Division of Neurology at the University of Ottawa and The Ottawa Hospital (TOH) is recruiting a neuromuscular neurologist! The team is seeking a neurologist with a minimum of one year of fellowship training in neuromuscular disorders to join a group of nationally and internationally recognized neuromuscular neurologists working in the NeuroMuscular Centre, a large clinical research centre with clinical, electrodiagnostic testing and dedicated clinical-research space. As a neuromuscular neurologist you will have the opportunity to: ✨ Conduct outpatient neuromuscular disorder clinics ✨ Perform electrodiagnostic studies (Canadian EMG certified) ✨ Rotate on the neurology inpatient and neurology consultation services ✨ Participate in neurology academic activities ✨ Teach medical students, residents and fellows in outpatient and inpatient settings ✨ Participate in the neurology on-call rotation on a regular basis ✨ Provide 1 day / week general neurology clinic Does this role sound like you or someone in your network? See the full posting here: https://lnkd.in/eDufN4Cu #neurojob #neurologyjob

The Western Canadian Neuromuscular Conference can now be found on social media! Follow their accounts across LinkedIn, X, and Instagram to stay informed on conference updates and other important information. 👋 ⏰ #WCNMC2024 registration is still open, and abstract submissions are still being accepted until next Friday, September 13th. Submit your abstract today and register for the conference at: https://www.wcnmc.ca/en/

Together with Muscular Dystrophy Canada we are excited to announce the opening of our 2025 annual neuromuscular fellowship funding competition to award postdoctoral fellowships in neuromuscular disease (NMD) research, and clinical fellowship awards in neuromuscular medicine and electromyography! This funding competition provides salary support for: 🔬🧬 Postdoctoral research fellowships for early-career scientists to conduct studies in a laboratory focused on the research of NMDs. 👩🏻⚕️👨🏾⚕️ Clinical fellowships for early-career clinicians to participate in a neuromuscular medicine and electromyography #EMG fellowship training program. ⏰ Dates and Timelines: Funding competition opened: September 3rd, 2024 Application submission deadline: October 15th, 2024 Submit your application at:  https://lnkd.in/een-G4A9 Institute of Musculoskeletal Health and Arthritis (IMHA) #neuromuscular #fellowship #funding #postdoc #research #neurology #DMD #DM1 #FSHD #SMA

Exciting update from our Clinical Trial Network team, as we launched the Canadian Neuromuscular Clinical Trial Database in August! 🍁🔍 Developed by the NMD4C Clinical Trial Network in collaboration with trial site teams across Canada, the database offers a comprehensive overview of all recruiting and not yet recruiting neuromuscular clinical trials in Canada. The database is designed to : ✨ Provide up-to-date information on recruiting and upcoming trials, including site locations and contacts. ✨ Foster collaboration among investigators by connecting sites conducting the same trial at different locations to address challenges and share best practices. ✨ Streamline patient referrals to appropriate trails and clinical sites. Explore the Canadian Neuromuscular Clinical Trial Database now at: https://lnkd.in/e2iD5Wku Institute of Musculoskeletal Health and Arthritis (IMHA) Muscular Dystrophy Canada #neuromuscular #clinicaltrials #trials #canada #SMA #DM1 #DMD #FSHD

🚀 We're back from our summer break with our monthly Rare Insights newsletter! Have you checked out our September edition?  👉 https://lnkd.in/gXKiUz8Z   This month's highlights include:  📅 Key details about CRDN's Townhall on October 31. 🎉 Information on RareKids-CAN services for pediatric #raredisease clinical trials. 🍁 Exciting news about a first Canadian registry for systemic autoinflammatory diseases, and all provinces/territories now screening for spinal muscular atrophy.  ...and so much more!   📢 Don't miss out! Check your inbox! Not a subscriber yet? Sign up here: https://lnkd.in/gXKiUz8Z   #CRDN #RareLivesSharedStrength #Canada4Rare #RareInsights - 🚀 Nous sommes de retour de notre pause estivale avec notre lettre d'information mensuelle Rare Insights ! Avez-vous consulté notre édition de septembre? 👉 https://lnkd.in/gXKiUz8Z  Les points forts de ce mois-ci sont :  📅 Des détails clés sur la réunion publique du RCMR le 31 octobre. 🎉 Information sur les services de RareKids-CAN pour les essais cliniques sur les #maladies rares pédiatriques. 🍁 Des nouvelles excitantes au sujet d'un premier registre canadien pour les maladies autoinflammatoires systémiques et du dépistage de l'amyotrophie spinale dans toutes les provinces et tous les territoires.  ...et bien d'autres choses encore!  📢 Ne manquez rien! Vérifiez votre boîte de réception! Vous n'êtes pas encore abonné? Inscrivez-vous ici: https://lnkd.in/gXKiUz8Z #RCMR #ViesRaresForcePartagée #Canada4Rare #RareInsights

Taking place TODAY! Join us for Dr. Zahra Aleisa's case presentation "Navigating the Unknown: A Neonatal Case with Unanticipated Challenges". 👉Register at: https://lnkd.in/e25GvWS9 #LetsTalkNMD Muscular Dystrophy Canada Institute of Musculoskeletal Health and Arthritis (IMHA)

⏳There is still time to register for our next CPD-accredited webinar! Join us and Muscular Dystrophy Canada for the neuromuscular mystery case presentation "Navigating the Unknown: A Neonatal Case with Unanticipated Challenges" from The Hospital for Sick Children neuromuscular fellow Dr. Zahra Aleisa. 📅 Tuesday Sep 3, 2024 🕝 5:00pm ET Register at: https://lnkd.in/e25GvWS9 #LetsTalkNMD #neuromuscular #caserounds