Today is World Atopic Eczema Day! Atopic Eczema is a complex, systemic disease that goes beyond the surface of the skin, often affecting patients' overall health and quality of life. This year, we’re bring to the forefront the real experiences of those battling Atopic Eczema every day and shedding light on the untold stories of Atopic Eczema patients. Join the #AtopicEczemaUnfiltered campaign: https://lnkd.in/gps6rqKN #GlobalSkin #AtopicEczemaAwareness #Eczema #SkinDisease #Dermatology #AtopicEczemaDay #AtopicEczema
GlobalSkin - International Alliance of Dermatology Patient Organizations
Wellness and Fitness Services
Ottawa, ON 2,058 followers
A Global Alliance Serving Patient Organizations to Improve the Lives of Dermatology Patients Worldwide.
About us
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution, or economic disadvantages due to their conditions. GlobalSkin is a not-for-profit organization working with more than 165 patient association members ─ located in over 50 countries representing more than 60 disease areas ─ to improve the lives of those affected by dermatological conditions throughout the world by: - Initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life; - Raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding; - Supporting our Members, not-for-profit dermatology patient organizations, through education, global campaigning, sharing of best-practices and beneficial networking opportunities to strengthen support for patients and build a strong, inclusive movement; - Building special focus communities; and conducting patient–initiated research. We appeal as one voice to the World Health Organization and other key influencers to recognize the debilitating nature of dermatological disease so that more resources for research and treatment options are made readily available to those afflicted and in need of help. The common thread through these important initiatives is credible data, which we will collect in the first-ever global patient-initiated 'impact of skin disease’ research project, expected to have a profound and lasting impact on key decision-makers. By collecting data from the dermatology patient perspective to represent various real-life conditions around the world, the dermatological community will gain better awareness, making it easier to truly help patients.
- Website
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https://www.globalskin.org
External link for GlobalSkin - International Alliance of Dermatology Patient Organizations
- Industry
- Wellness and Fitness Services
- Company size
- 2-10 employees
- Headquarters
- Ottawa, ON
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Skin Health, Dermatology Patient Alliance, patient organization, advocacy, dermatology, skin disease, eczema, psoriasis, vitiligo, skin cancer, rare disease, acne, Hidradenitis suppurativa, albinism, birthmark, Pemphigus & Pemphigoid , Alopecia , XERODERMA PIGMENTOSUM, and Epidermolysis Bullosa
Locations
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Primary
43 Florence Street
Ottawa, ON K2P 0W6, CA
Employees at GlobalSkin - International Alliance of Dermatology Patient Organizations
Updates
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🌟 #FollowFriday Spotlight 🌟 This week, we’re highlighting Scarring Alopecia Foundation - SAF with HQ in #USA! They support individuals with cicatricial alopecia through education, advocacy, and research funding. Follow them to stay informed, access resources, and join a community advocating for better care. Learn more: Website: https://lnkd.in/dQn4BzZH Facebook: https://lnkd.in/eYVg7s3e Instagram: https://lnkd.in/e_3eDk23 Twitter (X): https://lnkd.in/eqXJhPMG #CARFInternational #CicatricialAlopecia #HairLossAwareness #GlobalSkinMemberLove
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GlobalSkin is excited to welcome the following new members to its global alliance: - Pemphigus + Pemphigoid Selbsthilfegruppe e.V. Germany - Rare Disease Ghana Initiative - Amore en la Piel Costa Rica - SADA (Severe Atopic Dermatitis Association) Korea - Massé World USA - International Association of Hidradenitis Suppurativa Network USA - Standing Voice Malawi - Hidradenitis Suppurativa Australia With 282 members from 70 countries and 59 unique disease areas, our community continues to grow. If you're part of a dermatology patient organization and want to learn more about how to become a GlobalSkin member, visit https://lnkd.in/gBDihWV #GlobalSkin #Members #Dermatology #Community #GlobalAlliance
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For those living with Atopic Eczema, every day is a physical battle, with precious moments lost to relentless discomfort. This World Atopic Eczema Day (Sept. 14), let’s come together to raise awareness and show empathy for those enduring this daily struggle. Share your Atopic Eczema story using #AtopicEczemaUnfiltered and tag us so we can give your voice a platform. Also, remember to download WAED 2024 resources from globalskin.org/WAED2024 to fuel your awareness efforts. Let's stand up for those who suffer. #AtopicEczemaDay #WorldAtopicEczemaDay #EczemaAwareness
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Enhance your advocacy through effective communication! Join GlobalSkin’s two-part workshop, led by expert Neil Bertelsen, to sharpen your messaging and make a bigger impact. Sessions on Sept 16 & Oct 7. Open to Atopic Eczema Community members. Check your inbox for the registration link. #AdvocacyTraining #GlobalSkin #AtopicEczema #AdvocacySkills #CommunicationSkills
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September is Alopecia Awareness Month. GlobalSkin is dedicated to supporting members like Alopecia UK in raising awareness of the challenges faced by those living with Alopecia. Discover how you can make a difference: https://bit.ly/3ATLvZU #AlopeciaAwareness #GlobalSkin #Alopecia #RaisingAwareness #Support
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🌟 #FollowFriday Spotlight 🌟 This week, we’re excited to highlight APAPSO from #Peru! This organization is dedicated to supporting individuals with #psoriasis by providing essential resources, raising awareness, and advocating for better care and understanding of this chronic condition. Follow them to stay informed about the latest in psoriasis care, access valuable resources, and join a community committed to improving lives. Learn more: Website: psoriasis.org.pe Facebook: https://lnkd.in/evysXHMC Instagram: https://lnkd.in/ewmKwHMz Twitter: https://lnkd.in/eSYGBpnk #PsoriasisPerú #PsoriasisAwareness #SkinHealth #Support #Advocacy #GlobalSkinMemberLove
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Since its inception, the GRIDD project has made significant strides. To explore how GRIDD has evolved over the years and how it strengthens our voice for Members and their dermatology patients, check out GRIDD resources and publications at https://lnkd.in/e6KjSpj6 #Dermatology #GRIDD #Resources #Publications #GlobalSkin
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This World Atopic Eczema Day (Sept. 14), let’s shed light on the emotional toll of searching for effective and affordable Atopic Eczema treatment that both patients and their families experience. Your journey matters! Share your Atopic Eczema story using the hashtag #AtopicEczemaUnfiltered and tag us so we can amplify your voice. Also, download the official WAED 2024 resources from globalskin.org/WAED2024 and use them in your awareness campaigns. Together, we can make a powerful impact. #AtopicEczemaDay #WorldAtopicEczemaDay #EczemaAwareness
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🌟 #FollowFriday Spotlight 🌟 This week, we’re shining the spotlight on Standing Voice Malawi! Standing Voice Malawi is dedicated to empowering and supporting people with albinism through education, healthcare, and advocacy. Their work is crucial in combating stigma and promoting inclusion across #Malawi. Let’s stand together with Standing Voice Malawi in their fight for justice and dignity! Facebook: https://lnkd.in/eTan4sem #StandingVoiceMalawi #AlbinismAwareness #HumanRights #Inclusion #Support #Advocacy #GlobalSkinMemberLove