Defeat Duchenne Canada

🚨 It's not too late to register! Join us for a powerful weekend at Defeat Duchenne Canada’s Family Forum. Take part in FREE educational sessions, expert discussions, and families networking opportunities. When: September 21-22, 2024 Where: The Bayview Yards in Ottawa & Online via Pheedloop How: Register here https://bit.ly/3ZciPFn. Don’t miss out on the country’s only national education program designed for families living with #Duchenne #musculardystrophy.

Have a burning question for our expert speakers at the upcoming Defeat Duchenne Canada Family Forum? We encourage all attendees, whether joining us in person or virtually, to submit your questions in advance. You can ask anonymously or include your name. Not sure which speaker is best equipped to respond? Don't worry, we'll make sure your question reaches the right expert. This is your opportunity to get direct insights and guidance from leaders in the #Duchenne #musculardystrophy community. Submit your questions today: https://lnkd.in/eZ9Fi77J.

Join us NEXT WEEKEND in person at Bayview Yards in Ottawa, or online from anywhere across Canada for the 2024 Family Forum: https://bit.ly/3vCNrDT. Hosted in partnership with CHEO, this FREE! once-a-year educational opportunity is designed specifically for individuals and families living with #Duchenne #musculardystrophy. With over 20 speakers who you can directly connect with, you won't want to miss this weekend filled with education, inspiration, and hope.

A huge thank you to all the monuments across Canada that helped shine a light on Duchenne this past weekend! Let’s keep the movement going all month—share with us what TIME IS MUSCLE ⏰ means to you, watch the 2024 World Duchenne Awareness Day documentary, and more at: defeatduchenne.ca/wdad2024.

Join us at the 2024 Family Forum and discover the power of connection! 🌟 Building a strong network of families facing similar challenges is invaluable. These friendships and support networks will stay with you across provinces and years, providing comfort, guidance, and strength. At the Family Forum, you'll have the opportunity to connect with others who truly understand your journey with #Duchenne #musculardystrophy. Come join us and forge lasting connections that will uplift and empower you on your battle against Duchenne. Register now to secure your spot: https://bit.ly/3vCNrDT.

This September, during #Duchenne Awareness Month, we’re shedding light on this rare disease because with a Duchenne diagnosis, time is muscle. Duchenne #musculardystrophy affects all muscles, including the heart and lungs, but early signs are often overlooked, leading to a diagnosis around age four. By increasing awareness, we can help families recognize symptoms sooner and access the care they need. Some Early Signs of Duchenne: ➡️ Frequent falls or clumsiness ➡️ Gower’s maneuver (using hands to "walk" up the body) ➡️ Trouble climbing stairs or toe walking ➡️ Fatigue and large calf muscles (pseudohypertrophy) Recognizing these signs early can fast-track families to the crucial support they need. For more information, contact your family doctor and learn more at https://bit.ly/3X6S3LT.

We are incredibly grateful for the unwavering support of our educational partners! Without their dedication, our annual Family Forum wouldn't be possible. Sending a HUGE thank you to Catalyst Pharmaceuticals, Inc. for being a GOLD SPONSOR this year. 💛 Thank you for playing a vital role in helping our charity connect and empower the national #Duchenne #musculardystrophy community. Learn more the Family Forum: https://bit.ly/3vCNrDT.

We are thrilled to welcome our Keynote Speaker, Elijah J. Stacy. At just 23 years old, Elijah is an accomplished author, entrepreneur, investor, and public speaker. At the age of 15, he founded the nonprofit Destroy Duchenne, dedicated to advancing revolutionary medicines for #Duchenne #musculardystrophy. Elijah is determined to save his own life, his brothers' lives, and the lives of thousands of people around the globe who have been diagnosed with Duchenne. Be prepared to be inspired by his incredible talk happening on September 21. A special thank you to Satellos Bioscience for helping us bring this incredible speaker to the 2024 Family Forum. Register today to make sure you catch it live: https://bit.ly/3vCNrDT.

Today is World #Duchenne Awareness Day, and you can be part of the effort to help more families connect to research, advocacy and support: https://bit.ly/3QK5X5d. How to get involved: 🎈 Shine a Light: Take a picture at one of the 26 landmarks across Canada that will light up in red and post it on your social media using #WDAD2024 and tagging @defeatduchenne @worldduchenne. 🎈 Share on Social: Personal stories have the power to inspire, educate, and create positive change. Share your message on what Time is Muscle means for you, or share one of the international stories from the World Duchenne Organization. 🎈 Watch & Learn: Watch the 2024 World Duchenne Organization documentary and share it with your community! #musculardystrophy

This World Duchenne Awareness Day, we’re inviting you to join us in raising your voice and sharing what *Time is Muscle* means for families affected by #Duchenne #musculardystrophy. By telling your story, you can help us reach more people, share the realities of living with Duchenne, and call for urgent access to approved treatments. Your personal experiences have the power to inspire, educate, and drive change. Post on social media using #TimeisMuscle and tag @DefeatDuchenne to ensure your story resonates far and wide. Let’s unite our voices on September 7 and push for immediate access to the treatment and care our community needs. Learn more about World Duchenne Awareness Day: https://bit.ly/3QK5X5d.