AYA CAN - Canadian Cancer Advocacy

AYA CAN - Canadian Cancer Advocacy

Non-profit Organizations

Winnipeg, MB 177 followers

Advocating for Canadian Adolescents and Young Adults affected by Cancer

About us

Our Mission is to advocate for an equitable and integrative system of care to improve the experiences of Canadian adolescents and young adults affected by cancer.

Website
www.ayacan.ca
Industry
Non-profit Organizations
Company size
1 employee
Headquarters
Winnipeg, MB
Type
Nonprofit

Locations

Updates

  • Congratulations to Dr. Fiona Schulte, whom we work with, and all the award recipients!

    View organization page for Canadian Cancer Society, graphic

    48,864 followers

    We’re proud to announce the 2023 recipients of our most prestigious annual awards. This year’s Canadian Cancer Society Awards for Excellence in Cancer Research recognize the outstanding achievements of 8 leading cancer researchers in Canada. Since 1993, these annual awards have recognized some of the most talented research leaders and innovators who have helped advance cancer research and improve outcomes for people with cancer. Watch the recipients talk about what this award means to them. Congratulations to all recipients! Read more about their research: https://lnkd.in/gy5QQ7Jx

  • We agree!!! Stop. Doing. This! No one wins or loses.

    View profile for Trevor Maxwell, graphic

    I write and speak about life with stage IV cancer. Founder of Man Up to Cancer

    Note to media (and everyone else)... Please. Stop. Doing. This. This woman did not "lose a battle" to cancer. She died of cancer. When a person dies from a heart attack, do we say "He lost his battle with heart disease" ? When a person dies from diabetes, do we say "She lost her battle with diabetes" ? When a person dies from a stroke, do we say, "He lost his battle with a narrowing blood vessel" ? No we don't. Let me repeat one of my favorite quotes, from the late great Stuart Scott: "When you die, it does not mean that you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live." And here's another favorite quote, from the late great Norm McDonald: “I’m not a doctor, but I’m pretty sure if you die, the cancer dies at the same time. That’s not a loss. That’s a draw.”

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  • Something for AYA patients!

    Do you work with young people with cancer? Multidisciplinary experts from the Victorian Adolescent & Young Adult Cancer Service, based at Peter Mac, are launching free courses to share their unique expertise to assist in navigating the best course of care for your patients. Read more and enrol: https://lnkd.in/gJs-RyGA

    New free courses in adolescent and young adult (AYA) cancer care  - Peter MacCallum Cancer Centre

    New free courses in adolescent and young adult (AYA) cancer care  - Peter MacCallum Cancer Centre

    petermac.org

  • Be sure to check out the new Access website!

    View organization page for ACCESS-ACCES, graphic

    180 followers

    We have a new website! 🎉 ACCESS is a national research network connecting and empowering diverse people and organizations to conduct research, change policy, and develop new tools to ensure better lives for children who experience cancer in Canada. To support this unique collective of scientists, healthcare providers, partner organizations, advocates, patients, and their families, ACCESS has developed a comprehensive website that will act as a virtual ‘community hub’. Here, you can find the latest #pediatric cancer research, clinical advancements, educational resources, events, and stories from the community. Join our mission to advance childhood cancer experience, science, and survivorship. #WeAreACCESS Link: www.accessforkidscancer.ca

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  • Our board chair, Chantale shares her story to raise awareness that cancer can happen to young adults. Always advocate for yourselves!

    View organization page for Patient Voice, graphic

    2,512 followers

    “My husband and I had been trying to expand our family for a while. I was eager to have another child, despite the weird little pains that had been cropping up since the birth of our first son. When I did get pregnant, though, I miscarried at 11 weeks. It was horrible. My body was slow to heal, but eventually I was ready to try again. We went to the fertility clinic here in Manitoba. There’s only one. They scheduled a laparoscopic procedure to look inside my abdomen and see if anything unusual was going on in there. Something unusual was. It was cancer. And it was everywhere. At first they thought it was ovarian cancer. Then gastrointestinal cancer. Then everyone was sure it was colon cancer. But the colonoscopy came up clear. I remember at one point a resident told me I was ‘a very interesting case.’ I told him I didn’t even know what that meant. It turns out, it’s not a good thing. I ended up starting chemotherapy still without a clear answer as to what type of cancer I had. And after that it was surgery. Basically all the ectomies. They took out my gallbladder, my spleen, my omentum, and my appendix. And they performed a radical hysterectomy. At no point did I feel like I was involved in my own care plan. It was only after testing all the bits they’d pulled out of me that they were able to determine it had been appendix cancer all along. From pregnancy, to miscarriage, to stage four cancer, to having my reproductive system removed, it happened so quickly, and without anyone asking me how I felt or what I wanted. I know my case was unique and urgent, and I’m glad I got the treatment I needed. But it could have been done with so much more compassion. And I know others are having the same awful experience. After all, every cancer case is unique. My son is nine now and, as he grew, he had so many questions. When he asked me why he didn’t have a brother or sister, I took great care to explain to him why mom wasn’t able to have any more kids. And now, because he understands, he’s able to be happy as an only child. I only wish anyone had taken similar care to help me understand what was happening to me in my cancer journey.” Chantale Winnipeg, MB Appendix cancer With AYA CAN - Canadian Cancer Advocacy

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  • AYA CAN - Canadian Cancer Advocacy reposted this

    View organization page for Youth Cancer Europe , graphic

    1,343 followers

    🌈 This Pride Month, Youth Cancer Europe is proud to highlight our recently published White Paper on Recommendations for Equitable, Diverse, and Inclusive Cancer Care 🙌 ⚡️ We believe every individual, regardless of gender identity or sexual orientation, deserves respectful and inclusive care. Our recommended actions focus on promoting awareness and support for LGBTQ+ individuals affected by cancer, ensuring they receive the best care possible.🎗️ 🔵 Read more about our EDI Policy Paper here: https://lnkd.in/dfNuzqYT European Commission | European Network of Youth Cancer Survivors | Fundacja Pani Ani | Katie Rizvi | Victor Girbu |Carmen Monge-Montero | Urška Košir | Stewart O'Callaghan | Johan De Munter | Karl Smith Byrne | Andrea Ruano | Anna Zettl | Varduhi Sargsyan | Brad Gudger #EDI #CancerCare #EU4Heath #EUCancerPlan

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  • AYA CAN - Canadian Cancer Advocacy reposted this

    View organization page for ACCESS-ACCES, graphic

    180 followers

    The ACCESS Cancer Biology research theme is developing a Molecular Pathology Board (MPB). The MPB will discuss and identify optimal assays for referred patient cases and provide feedback and support to develop and establish promising pre-clinical assays. The research theme is seeking interested individuals with relevant expertise to serve as MPB members for a two or three years term - all of whom will be voting members of the MPB. Seeking expertise in the following areas: - Pediatric Hematology-Oncology - Hematopathology - Adolescent and Young Adult Oncology - Phase I Clinical Trials or Developmental Therapeutics Experience - Radiation Oncology As a pan-Canadian network, ACCESS will be looking to recruit members from across Canada to ensure that the MPB represents diverse health systems, provinces and jurisdictions. Self-nominations are accepted. If you would like to nominate yourself or recommend a potential MPB member(s), please provide their names and contact details or feel free to forward this email. Nomination Deadline: Thursday, July 4, 2024. Send us a nomination email at [email protected].

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  • 🎗️ Today, June 26th, is National Cancer Wellness Awareness Day! 🎗️ This special day is dedicated to bringing awareness to cancer wellness and the valuable care and support provided by cancer wellness centres. Many are unaware of these services, and by holding this national awareness day, we aim to educate a broader audience and encourage them to access comprehensive support and resources that enhance their well-being. This whole-person approach empowers those living with cancer by addressing their physical, spiritual, emotional, informational, social, systemic, and practical needs, complementing traditional medicine and allowing people to live well with cancer. 🌟 Share this post to help us reach more people and ensure they get the support they need! #NCWAD #CancerWellness

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  • AYA CAN - Canadian Cancer Advocacy reposted this

    View organization page for ACCESS-ACCES, graphic

    180 followers

    You're invited! The aim of the ACCESS Knowledge Mobilization Group is to advance information sharing and exchange between researchers, patient communities, and other relevant parties and to improve the uptake of evidence-based knowledge through multiple pathways, methods, and media. The Group is delighted to invite you to an Open Meeting led by their Co-Leads. Date: Wednesday, June 26, 2024 Time: 1:00 - 2:30 PM ET Location: Virtual This Open Meeting is an opportunity to learn more about their newest Co-Leads and to review and solicit feedback on the draft protocol for ongoing work being conducted by the team. Please email the ACCESS Secretariat ([email protected]) for an invitation.

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