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Customer Review
Reviewed in the United States on February 22, 2020
As a parent who had to make end of life decisions for my 15 year old son who was born with a rare congenital muscular dystrophy, so much of what Dr. Puri shares resonated with me. Even though she writes about end of life decisions for adults, the stories and take-aways apply equally to decisions parents have to make for their children with chronic, life-limiting conditions. This book helped ease some of the guilt and burden that I still carry in connection with end of life decisions we had to make for our son. One of my favorite quotes in the book is from the Sanskrit Scripture - Bhagavad Gita: "The soul wears the body like a cloth and discards it at the time of death." This gives me great comfort. I highly recommend this book for parents of children with life limiting conditions who have to make decisions regarding palliative care and hospice for their child. It's beautifully written and provides so much insight and comfort for all of us who are dealing with end of life - whether as someone who has to make the decisions or someone who has to guide others in the decision-making. Ann S.
